Friday, May 16, 2008
News about Charles and Sis and I
Here is an older photo of Charles from November, and a photo of myself and my grandson in April on my birthday. We went to San Antonio last Friday and got home late Monday night. Charles seemed better than the weekend before. We had a meeting on Monday with several members of the hospice that is taking care of Charles, and some members from the staff of Charles' home.
At the meeting we had the director, an RN, a social worker, and the Chaplin from Bethany Hospice. Also there was the Administrator, home nurse, Q, which is over the house mom, who was also there.
We had been alerted that the home was thinking of sending Charles to a nursing home, and we weren't having any of that! However, it turns out that they were not going to send him to a nursing home. The thing is that if Charles gets into a crisis that can be managed better at the mini-hospital of the hospice, they will take him there.
Charles is having increasing pain in his left leg, and so they are giving him more morphine for his break through pain, which makes him more sleepy.
The RN from the hospice and the RN from the home agree that Charles will probably suffer more broken bones, where the cancer lives in the marrow of the bones and causes large tumors. We are pretty sure he has one on his leg. They will probably put it in a cast, but it won't heal. Then he will be bed bound. They brought his hospital bed, which looks just like a twin bed. It has electric controls, and side bars that are down now. He just loves it. He said the handyman bought it for him because he is the one who delivered it! The hospice director said that everyone always wants to know how much longer the patient has. He said they count time differently than we do in the world. He said they say months to a year, weeks to months, days to weeks, and hours to days, and minutes to hours. They say Charles has weeks to months, so we are not sure how long that will be. He is loosing more weight, eating less, less active, and like I said, sleeping more. He has been sort of going up and down, but always in a decline, and as he gets worse, he will go straight down.
My head is reeling, and my nerves are a mess again. I have been to the doctor to get some injections in my left shoulder, neck and head to block the pain, and I am taking muscle relaxers to help me get better. I also had injections in my right hip (my bad one) and my right knee. I am feeling some better. We would be going again tomorrow for the day, but Sis and her husband are going, and I will stay home and rest.
Charles is still happy to see us, and he felt strong enough to go to Denny's one morning for breakfast, and we had a great time together. He finished a new black velvet art project that was almost ruined. Someone spilt their drink on it, and some of the colors blended together. I think it looks great, and maybe that's the trick to blending those watercolor markers, just dump water on it! We had a great time with all of the clients there since we were all the house most of the time. Laughting, and playing and watching movies. It is the saying goodbye that is so difficult. I went over to him in his recliner to say goodbye on Monday, after the meeting, and I just hugged Charles so closely, and I could feel all of his bony back, and then I couldn't let him go. Only when I knew that I was going to cry did I let him go and turned away so he couldn't hear me or see my face. I went out of the door and just cried and cried for my brother.
Please continue to keep Charles on your prayer list. Thank you so much for all of the beautiful new cards that I saw this time. Each one a treasure to Charles and to me.
Posted by Mary Lynn at 10:00 AM